Helpful Resources

Books 

Videos

  • Death Land. For The Guardian, Leah Green interviews several patients with terminal illness. In one installment, she spends time with a 34-year-old man dying from throat cancer who says "dying was nothing like had anticipated". He considers himself very lucky.

  • Being Mortal. For Frontline by PBS renowned surgeon and writer Atul Gawande explores how untrained and uncomfortable doctors are in discussing end-of-life matters with their patients.  Dr. Gawande's bestselling book by the same name is listed above.

  • How Doctors Tell Patients They're Dying I Being Mortal I FRONTLINE.  Follows palliative care and other physicians as they discuss end of life with their patients. 

  • Extremis. Netflix documentary reflecting the wrenching emotions that accompany end-of-life decisions, as doctors, patients and families in a hospital ICU face harrowing choices.

  • Caregiver: A Love Story. Award winning documentary detailing the experiences of a husband becoming the primary caregiver of his 59-year old wife, who decides to forego further cancer treatments to spend her remaining time at home.

Cancer Resources General

 

Clinical Trial Resources 

  • ClinicalTrials.gov, NIH, U.S. National Library of Medicine --  Online resource that provides patients, their family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

 

Advanced Directives Resources

  • Five Wishes®/Aging with Dignity -- An advance directive to address personal, emotional, and spiritual issues in addition to meeting medical and legal criteria. With the help of the American Bar Association and end-of-life experts, and with support from The Robert Wood Johnson Foundation, Aging with Dignity developed the Five Wishes® program and advance directive document designed to be an accessible, legal, and easy-to-understand with the goal of helping people discuss and document their wishes in a non-threatening, life-affirming way.

  • National Institute on Aging/National Institutes of Health -- U.S. Government agency that provides articles and other resources to help set affairs in order and plan for life's end. 

Palliative Medicine Resources

  • American Academy of Hospice and Palliative Medicine (AAHPM) -- Organization of physicians and other medical professionals dedicated to prevention and relief of patient and family suffering by providing education and clinical practice standards, fostering research, facilitating personal and professional development, and by public policy advocacy.

  • American Board of Hospice and Palliative Medicine (ABHPM) -- Promotes excellence in the care of all patients with advanced, progressive illness through the development of standards for training and practice in palliative medicine.

Pancreatic Cancer Organizations

 

  • Lustgarten Foundation -- A leading funding and information source for the diagnosis, treatment, and prevention of pancreatic cancer.

  • Pancreatic Cancer Action Network -- A leading resource network dedicated to fighting pancreatic cancer on all fronts: research, clinical initiatives, patient services and advocacy.

  • Let's Win! Pancreatic Cancer -- Platform enabling doctors, scientists, and patients to share fast-breaking information on potentially life-saving pancreatic cancer treatments and clinical trials.

  • Hirshberg Foundation for Pancreatic Cancer Research -- A national, nonprofit organization dedicated to advancing pancreatic cancer research, and providing information, resources, and support to pancreatic cancer patients and their families.

  • Michael Rolfe Pancreatic Cancer Foundation -- A organization that provides personal support to those affected by pancreatic cancer through tailored resources, connections and education, and funding for early detection research.

  • The National Pancreas Foundation -- An nonprofit organization that provides help for those suffering from pancreatitis and pancreatic cancer through funding cutting edge research, advocating for new and better therapies, and provides support and education for patients, caregivers, and health care professionals.

 

Breast Cancer Organizations

 

  • Breastcancer.org -- Provider of information about all aspects of the breast cancer experience in the form of articles, research, podcasts, videos, patient stories and peer-to-peer community support.

  • Breast Cancer Alliance -- Fundraiser in breast cancer research, breast surgery fellowships, regional education and support and screening for underserved populations.

  • National Breast Cancer Coalition -- A grassroots advocacy organization that seeks to improve public policies surrounding breast cancer research, diagnosis and treatment.

  • National Breast Cancer Foundation -- Provider of early detection programs including free mammograms for underserved women, educational resources and other support services for women affected by breast cancer.

  • Breast Cancer Research Foundation (BCRF) -- A leading funder of metastatic breast cancer research.

  • Susan G. Komen Foundation -- A sponsor of breast cancer research, education, screening and treatment.

 

Leukemia Cancer Organizations

 

  • Bone Marrow and Cancer Foundation -- Provider of financial assistance, comprehensive resources, educational information, physician referrals, and emotional support programs for cancer and transplant patients and their families.

  • The Leukemia & Lymphoma Society (LLS) -- A funder of clinical research and provider of patient education, support and advocacy programs.

 

Liver Cancer Organizations

 

 

Bladder Cancer Organizations

 

  • American Bladder Cancer Society -- An online community for bladder cancer patients and organization focused on awareness through print media, internet resources and attendance and participation in relevant medical symposiums and conferences.

  • Bladder Cancer Advocacy Network -- National advocacy organization devoted to advancing bladder cancer research and supporting those impacted by the disease.

 

Lung Cancer Organizations

 

  • Free ME from Lung Cancer -- An non-profit raising money for lung cancer research, education, advocacy, and community support.

  • Lungcare.org -- a service of CancerCare®, providing free, professional support including counseling, support groups, financial assistance, educational workshops and publications for those coping with lung cancer.

  • Lung Cancer Research Foundation -- A funder of research to prevent, diagnosis, treat and cure of lung cancer and provider of educational materials and workshops for patients and caregivers.

  • LUNGevity Foundation -- An investor in scientific research and provider of educational resources and emotional support programs for those affected by lung cancer.

 

Cervical Cancer Organizations

 

Melanoma Cancer Organizations

  • Melanoma Research Foundation -- An advocate for the melanoma community, helping to raise awareness of the disease and funding for medical research.

  • The Skin Cancer Foundation -- An organization sponsoring research related to skin cancer prevention, early detection and treatment and publisher of skin cancer educational materials including posters, brochures, newsletters and journals.

 

Ovarian Cancer Organizations

 

Prostate Cancer Organizations

 

Stomach Cancer Organizations

  • No Stomach For Cancer -- Organization helping advance awareness and education about stomach cancer and supporting research efforts for screening, early detection, treatment and prevention of stomach cancer.

  • Debbie's Dream Foundation: Curing Stomach Cancer -- An non-profit raising awareness about stomach cancer, advancing funding for research, and providing education and support internationally to patients, families, and caregivers.

Thyroid Cancer Organizations

  • Light of Life Foundation -- An non-profit improving the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and improving thyroid cancer care by promoting research and development.

  • American Thyroid Association -- A leading information source for the diagnosis, treatment, and prevention of thyroid cancer.

Uterine Cancer Organizations

  • Foundation for Women's Cancer -- An nonprofit organization dedicated to increasing research, education and awareness about gynecologic cancer risk, prevention, early detection and optimal treatment.

Colorectal Cancer Organizations

  • Colorectal Cancer Alliance -- Organization providing genuine support for patients and families, caregivers, and survivors;  raising awareness of preventive measures; and inspiring efforts to fund critical research.

  • Fight Colorectal Cancer -- A leading source of colon and rectal cancer research, treatment, and policy.